GET INVOLVED IN NEW RESEARCH!

We are excited to invite Families to participate in a new study. We believe that the results of this research could have significant implications for our community!

Are you interested in exploring why your child might feel, act, learn, or communicate differently?

Are you interested in understanding the strengths and challenges of individuals with a TRIO gene difference?

So are researchers leading the BINGO project based at the MRC Cognition and Brain Sciences Unit, University of Cambridge.

Below, Josefine Eck, research assistant at the MRC Cognition and Brain Sciences Unit at the University of Cambridge, explained to Team TRIO the importance of their research and how TRIO families can contribute.

Dear Josefine, what is the aim of your study?

Together with your help, the information we gather aims to improve support for individuals with TRIO-Related Neurodevelopmental Disorder.

Why would the contribution of our families be important in your study?

The information you provide will help understand the physical, emotional, behavioural, social, and learning strengths and difficulties of individuals with TRIO-Related Neurodevelopmental Disorder.

Who is eligible to participate?

Currently, we are inviting children, young people, and adults (ages 3 years old and above) with a TRIO gene difference to take part in our research project.

What activities can be offered?

Activities which might be offered to you, depending on your child’s age and ability, include:

1. questionnaires and interviews online

2. play-based tasks at home (UK participants only)

3. EEG either at home or at the MRC Cognition and Brain Sciences Unit in Cambridge (UK participants only)

How can families participate in the study?

To find out more or register your interest, please contact us via email or telephone or visit the BINGO website:

E-mail: bingo@mrc-cbu.cam.ac.uk

Website: https://www.mrc-cbu.cam.ac.uk/bingo/

Telephone: (+44) 01223 769399